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2,033 results

VJNeurology
Insights into adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP)

Zbigniew Wszolek, MD, Mayo Clinic, Jacksonville, FL, introduces adult-onset leukoencephalopathy with axonal spheroids and ...

5:46
Insights into adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP)

475 views

1 year ago

American Brain Foundation
Fighting for ALSP Awareness, Treatment, and Cure: A Family’s Journey With a Rare Brain Disease | ABF

Jeffrey Cade's life was changed overnight when he was diagnosed with ALSP, a rare and fatal genetic brain disease with no ...

1:38
Fighting for ALSP Awareness, Treatment, and Cure: A Family’s Journey With a Rare Brain Disease | ABF

1,047 views

3 years ago

ULF Office
United Leukodystrophy Foundation: ALSP - 2022 Family Conference

The ULF presents on ALSP at the 2022 Family Conference.

1:32:46
United Leukodystrophy Foundation: ALSP - 2022 Family Conference

54 views

3 years ago

VJNeurology
IGNITE trial: treating ALSP with TREM2 receptor agonists

Zbigniew Wszolek, MD, Mayo Clinic, Jacksonville, FD, discusses IGNITE, a Phase II study evaluating the use of VGL101 for the ...

3:13
IGNITE trial: treating ALSP with TREM2 receptor agonists

111 views

1 year ago

CheckRare
A Family’s Experience With ALSP

Erin Sullivan, Executive Director of Sisters' Hope Foundation, discusses her family's experience with adult-onset ...

7:38
A Family’s Experience With ALSP

174 views

9 months ago

ULF Office
ULF 2021: ALSP (HDLS)

So i would just like to welcome everybody to the united liquor distribute foundation's virtual family conference session on alsp hdls ...

1:01:07
ULF 2021: ALSP (HDLS)

397 views

4 years ago

CheckRare
Axonal Spheroids and Pigmented Glia (ALSP)

Dr. La Piana, MD, PhD, Professor in McGill's Department of Neurology and Neurosurgery, defines ALSP and its diagnostic ...

5:26
Axonal Spheroids and Pigmented Glia (ALSP)

232 views

2 years ago

CheckRare
Clinical Research on Adult-Onset Leukoencephalopathy With ALSP

Dr. La Piana, MD, PhD, Professor in McGill's Department of Neurology and Neurosurgery, explains her research in axonal ...

2:51
Clinical Research on Adult-Onset Leukoencephalopathy With ALSP

373 views

2 years ago

Sisters' Hope Foundation
2024 ALSP Community Conference: Dr. Zbigniew K. Wszolek, MD

A presentation about 7 Tesla MRI by Dr. Zbigniew K. Wszolek, MD, Haworth Family Professor in Neurodegenerative Diseases, ...

3:32
2024 ALSP Community Conference: Dr. Zbigniew K. Wszolek, MD

88 views

1 year ago

Scenic Relaxation
The Alps 4K - Scenic Relaxation Film With Calming Music

The Alps are possibly the most magical region in the world! Enjoy this 4k Scenic Relaxation film across the wonders of the ...

1:00:48
The Alps 4K - Scenic Relaxation Film With Calming Music

7,132,871 views

4 years ago

Sisters' Hope Foundation
Misdiagnosed: 3 Families Unite Over Rare Disease ALSP | A Journey for Awareness & Cure

Three different families with different misdiagnoses lead them on one journey to raise awareness and ultimately save their families ...

8:20
Misdiagnosed: 3 Families Unite Over Rare Disease ALSP | A Journey for Awareness & Cure

285 views

3 years ago

Sisters' Hope Foundation
Living with HDLS/ALSP: A Family's Journey Through a Rare Neurodegenerative Disease | Heidi Edwards

A family living with HDLS/ALSP a rare neurodegenerative disease.

4:42
Living with HDLS/ALSP: A Family's Journey Through a Rare Neurodegenerative Disease | Heidi Edwards

97 views

4 years ago

Global Leukodystrophy Initiative
ALSP Workgroup (2022 GLIA Scientific Meeting)

Introduction and Heatmap Overview Jennifer Orthmann-Murphy, MD, PhD (University of Pennsylvania) Key Success: Testing ...

43:53
ALSP Workgroup (2022 GLIA Scientific Meeting)

107 views

3 years ago

Sisters' Hope Foundation
Remembering Holly: Honoring a Life Touched by ALSP | Spotlight Series Tribute

We lost Holly 2 years ago today. Help us fulfill her hope of finding a cure for ALSP! #sistershopefoundation #alsp #hdls #microglia ...

1:11
Remembering Holly: Honoring a Life Touched by ALSP | Spotlight Series Tribute

16 views

2 years ago

Motorama
Motorama — Alps (Official Video)

Concerts: https://wearemotorama.com/tourhistory https://mmmotoramaaa.bandcamp.com/

4:13
Motorama — Alps (Official Video)

4,337,752 views

15 years ago

Sisters' Hope Foundation
ALSP EL-PFDD Informational Webinar

This webinar to inform the ALSP about its upcoming Externally Led Patient Focused Drug Development meeting. In it, we will ...

20:01
ALSP EL-PFDD Informational Webinar

54 views

9 months ago

Sisters' Hope Foundation
2023 ALSP Community Conference: Uniting for a Cure | First-Ever ALSP Advocacy Event

Join us for an in-depth recap of the groundbreaking 2023 ALSP Community Conference, where patients, caregivers, researchers, ...

3:03
2023 ALSP Community Conference: Uniting for a Cure | First-Ever ALSP Advocacy Event

248 views

2 years ago

Hunter's Hope
Therapeutics in ALSP

At the 2025 Hunter's Hope Medical Symposium, Dr. Jenn Orthmann-Murphy provided an overview of the current status of ...

14:32
Therapeutics in ALSP

5 views

5 months ago

Sisters' Hope Foundation
Remembering Heather: A Tribute to a Life Affected by ALSP | Spotlight Series

Remembering Heather...Help us find a cure for ALSP! #sistershopefoundation #alsp #hdls #microglia #leukoencephalopathy ...

1:11
Remembering Heather: A Tribute to a Life Affected by ALSP | Spotlight Series

27 views

2 years ago

Jackman Law
Alternative Legal Service Provider (ALSP)

... all year and thank you eliana for coordinating this entire uh research working group that we had on alsp and for the tireless work ...

50:24
Alternative Legal Service Provider (ALSP)

823 views

3 years ago